Andrew Sylvester Haggenmiller

Andrew Sylvester Haggenmiller

Andrew approached everything with the diplomacy of a charismatic world leader, the strategy of a professional chess player and often displayed the fiery of a hurricane while somehow still maintaining the whimsy of a 4-year-old boy. That description collectively summarizes how Andrew approached cancer.
Andrew lived life loud and with absolute exuberance. His laugh would fill the rooms and your soul in a way that would simply make you happy and proud to have this little man in your life.

Ethan C. Haley

Ethan C. Haley

Ethan was a joyful, caring and fun-loving kid. A smile was almost always on his face. He was a peacemaker and enjoyed playing games together as a family. He loved his siblings, drawing, legos, the Yankees and his puppy Milo.

Early in 2018, Ethan was diagnosed with Grade 3 Anaplastic Ependymoma. He was strong and courageous and faced cancer with determination. After his second relapse, it was evident that he wouldn’t be with us much longer. He chose to face death head on and lived life to the fullest. His faith in Jesus Christ grew during this time and he was excited to go to Heaven. He left this earth December 20, 2020. “

Tanner Gillen

Tanner Gillen

Tanner Gillen was 13 years old when he was diagnosed with Grade 4 Glioblastoma. He remained charming, funny, and caring throughout his journey. Tanner loved art. His favorite piece The Great Wave off Kanagawa. He was a bit of a renaissance man. He loved Frank Sinatra and Gloomy Sunday by Bille Holiday. Tanner was quick witted and never at a loss for words. Tanners’ greatest accomplishment is being the best son, friend, brother, dog owner, fisherman, golfer, and lover of history. He remains quite simply, my greatest gift. He rested after a hard-fought battle on January 23, 2019, he was 14 years old.

Mackenzie Clyde

Mackenzie Clyde

Even though Mackenzie died at just ten years old, her impact during her short time here will be felt for decades to come. Anyone lucky enough to have known our daughter will tell you that she embodied love. She often helped collect toys for fellow cancer patients at Children’s Wisconsin and served with me at blood drives so people understood why blood donation was so important for those receiving treatment. Mackenzie’s love for her fellow humans is what inspired her dad and I to want to donate her tumor tissue. We know Kenz is looking down and cheering us on as we continue to advocate for pediatric cancer research, and we could not think of a better legacy gift than to give the gift of hope for a future where childhood cancer no longer exists.”

Lucy (LucyLove) Ann Sieck

Lucy (LucyLove) Ann Sieck

On November 13, 2020, just 5 short months after her initial diagnosis, sweet Lucy grew the most glittery, sparkly rainbow, beautiful angel wings that there ever has been. In the words of Lucy’s mom, Raegen, “Our hearts are shattered into infinite pieces, but we find comfort knowing that she is no longer suffering. Lucy’s battle may be over, but our war against DIPG wages on with fury.”
Every parent of a child diagnosed with cancer always remembers their last “normal” day. The day before their life changes forever.

Lydia Quinn Sharpe

Lydia Quinn Sharpe

Lydia, born March 26, 2016, was the youngest of Tara and Jonathan Sharpe’s three daughters. She was soft spoken, thoughtful, and extremely considerate. Of all her sisters, she was the one who was most willing to compromise so that other members of her family were happy. Tara and Jonathan refer to her as their “go along, get along” girl. What she wanted most was to just be with her family. If you were going somewhere, Lydia would drop whatever she was doing just so that she could go along with you.

Grayson Moser

Grayson Moser

Grayson was full of life and loved being around people. His life was tragically cut too short on 3/21/21, just two weeks after he turned 16. He was diagnosed with an aggressive pediatric brain tumor the month after he turned 14. He fought so courageously during his 23 month cancer journey and kept a positive attitude, despite so many awful side effects from treatments he endured. Before cancer, Grayson enjoyed all kinds of things.

Lejla Mae Bekric

Lejla Mae Bekric

One morning in August 2017, we woke up, it was a Sunday, and I only know that because I called our palliative nurse and I could hear the church choir in the background. Something wasn’t right with Lejla and after a home visit and some calls to our team, we headed to Children’s. We spent the next two weeks in the hospital, we had guests, Lejla’s birthday party, laughs, tears, and moments of tough decision making.

Michael Gustafson

Michael Gustafson

To know Michael Gustafson was to know laughter and ambition and brevity. Michael came into this world a leader. He was the first born twin (a fact he never let his sister forget). He shared not just the womb, but the same crib, the same bed and books and appetite for life with his twin sister. We think this is why, even as a young teenager, he would often wish to hold your hand or touch your arm when he sat next to you at the table or on the couch.

Jace Ryan Ward

Jace Ryan Ward

Jace lived every day with the mantra “I can’t die, I’m busy.” After diagnosis, Jace also loved – truly loved – the children he met with DIPG. He never asked why me? He asked why the little ones – the kids who haven’t played football under the lights, or skipped school, or kissed a girl. He asked his doctor, on the day he was diagnosed, “how long do I have to make an impact before I die?”