Blog

JP’s Legacy Short of stature but big of heart, Joe impressed all who met him with his kindness and good humor, especially around Christmas or birthdays. He excelled at finding the perfect gift, often spending months developing an idea or theme. Although he had a quiet demeanor, Joe could deliver exquisite zingers resulting in fits…

Liliana’s Legacy Liliana was diagnosed in April 2021 with Diffuse Intrinsic Pontine Glioma (DIPG) at the age of 2 ½ and passed away on June 17, 2023. She endured photon radiation under sedation five days a week for six weeks, took steroids that caused significant bloating and weight gain, and began taking a phase 1…

Nova’s Legacy Nova loved singing and dancing. It was a part of her daily life. She also loved sharing random animal facts with anyone who would listen. Her distinct giggle and smile were infectious. The beach was her happy place. She was the kind of girl you would want as a friend. She loved having…

Kaycee’s Legacy Kaycee Rose Clark was born on March 3, 2014, after a prayerful time of asking God to bring her into our lives. She was the most perfect baby—she ate, slept, and was joyful. As soon as she began to talk, she would speak about God’s love for her. She thrived in everything she…

Cheyenne’s Legacy Cheyenne Grace Nowland was born on March 15, 2024. She was the most precious baby girl, loved and adored by her parents, grandparents, aunts, uncles, and cousins. Cheyenne enjoyed going to church on Sunday mornings and Wednesday nights with her parents and especially loved spending time in the church nursery with her new…

Keanu, affectionately known as Kiki, will always be a radiant presence in our family. Kiki’s beautiful, infectious smile and giggles brought joy to everyone he encountered, including his dedicated medical team at NewYork-Presbyterian/Weill Cornell Medicine.

Levi was our typical fun and loving 5 year old boy. He loved to play t-ball, going to school, traveling, and most of all, playing with Transformers. He loved his family as well and his friends. Levi was loved by many.

Peyton’s Legacy Peyton was more than just our son—he was a light in this world. From the moment he entered our lives, his sharp wit and boundless curiosity made every day an adventure. He was the kid who could make anyone laugh, the one who saw every challenge as an opportunity, and who cared deeply…

Gretchen was a vibrant 13 year-old girl who loved school, sports, reading fiction and hanging out with her friends. She was going to start high school and try out for the field hockey team in August 2023

Sammy’s Legacy Sammy was a cheerful and rambunctious soul. He mastered riding a pedal bike on his first attempt at age 3. He loved trains—whether wooden, electric, or real—biking, racing around playgrounds, jumping on trampolines, and playing with his big brother. Sammy was the picture of energy and health until shortly after his 5th birthday…

Joel’s Legacy The news of my son Joel’s diagnosis is still hard to absorb—let alone understand—and it’s been months since he died. At the start of his third year at Texas A&M University, the Midline Glioma, or DIPG symptoms, started just as he was ready to take on the world with grand plans to save…