Gift from a Child … for a child

Empowering Brain Cancer Research Through Tissue Donation

Are you ready to take the Challenge?

When a child’s life ends too soon, donating tissue is a way for the child and family to take a final stand against cancer. Tissue donation is a contribution that improves outcomes for children with brain cancer that only families can make.

Stalled Research, Lagging Advancements & Increased Fatality Rates

Brain cancer has overtaken leukemia as the leading cause of cancer-related death for children. The reason children succumb to their cancer will remain a mystery until researchers are able to study both the diseased and healthy brain tissue of those children who do not survive their disease.

Leukemia is a blood disease and it is fairly simple to obtain blood samples to fuel research. It is not easy to obtain tissue samples when the disease is in a child’s brain.

Dr. Michele Monje

“Several decades ago childhood leukemia was a near universally fatal disease and now over 90% of children who have childhood leukemia survive because of enormous strides forward based on great research and clinical trials. Unfortunately, brain cancer is now the number one cause of death by disease in children.”


– Dr. Michele Monje, Neuro-Oncologist, Stanford Health Care

It is not easy to obtain tissue samples when the disease is in a child’s brain. Tissue samples can be obtained during a craniotomy, a complex surgery to remove the tumor from the brain; samples can be obtained through a biopsy which also can be complicated and pose risks for the child; and samples can be obtained at the time of death through an autopsy.

Tragically, one-in-five children who are diagnosed with brain cancer, die from their disease; and sadly, researchers and physicians do not know why the treatments do not work for these children. Until researchers are able to study the brain tissue of children who do not survive their cancer, it will remain a mystery why these children do not survive their disease.

When a child’s life ends too soon, donating tissue is a way for a family to take a final stand against cancer. Many families have reported their decision to donate their child’s autopsy tissue was one of the few positive steps they could take during those final tragic days. Tissue donation is a contribution to improving outcomes for children with brain cancer that only families can make.

To Donate Tissue:

A Simple Two-Step Process

For the family, once a decision has been made to donate, only two things are required. The first is written consent for the child to become a tissue donor, and the second is a single phone call to a tissue navigator at the time of a child’s death to initiate the process.

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Written Consent

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Written Consent

A Single Phone Call

A Single Phone Call

Family Donation Stories

Blog Feature

Gabriella

Forever 10

A Story from Gabriella’s Mom

John

Forever 15

A Story from John’s Mom

I Love You Always, Mom

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Except for Tissue

My Research Project Was Scrapped Due to Lack of Tissue I always knew I wanted to be a scientist. This meant that when I was younger, I loved watching movies and shows featuring some scientific aspect. Science is usually shown as someone having an idea, immediately...

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