When a child’s life ends too soon, donating tissue is a way for the child and family to take a final stand against cancer. Tissue donation is a contribution that improves outcomes for children with brain cancer that only families can make.
A Simple Two-Step Process
For the family, once a decision has been made to donate, only two things are required. The first is written consent for the child to become a tissue donor, and the second is a single phone call to a tissue navigator at the time of a child’s death to initiate the process.
A Single Phone Call
A Single Phone Call
Our Founding Families Share What Donating
Their Child’s Tissue Has Meant to Them.
She Has Wanted to Start a Family Companion Program Since She Lost Her Son.
Family Donation Stories
Gift from a Child was well represented in Tampa, Florida at the 2022 annual meeting for the Society for Neuro-oncology (SNO). This annual meeting is the largest national gathering of neuro-oncology professionals.
The week kicked off with education sessions, co-chaired by one of GFAC’s PIs, Dr. Michelle Monje, of Stanford. The focus of her track was the intersection of neuroscience and neuro- oncology.
In collaboration with Alex’s Lemonade Stand, Swifty Foundation (funder of GFAC) co-funded one of the early career researchers, Dr. Zulekha Qadeer. Dr. Qadeer won an award for and presented her abstract titled “ DDDR-33 – Targeting TGF² pathway dependencies in group 3 medulloblastoma”.
GFAC had the opportunity to present two abstracts of our own findings. They were both presented by our scientific intern, Nicole Lyons. We were thrilled to share our latest data, that we have had 195 (now over 200) successful post-mortem brain tumor tissue donations from over 50 (now over 55) different institutions since 2019.
Overall, SNO was a fantastic opportunity to connect with neuro-oncology professionals, both familiar and new. We are grateful for the chance to share our experiences and knowledge with the larger community in the hope of helping future patients.
My wise husband often reminds me, “It’s a sad and beautiful world.” This story is like that. It’s beautiful and sad.
You see, 10 years ago today, our son Michael donated his brain and spine to research when he died from childhood brain cancer. He came up with the idea himself, no doctor or friend suggested he help research in this way. Then, five days later my seemingly healthy mom had a heart attack at Mikey’s funeral … out of the blue she died at her grandson’s funeral lunch.