Blogs: Families, Foundations & Researchers
Parents encourage brain tissue donation after young son dies from rare pediatric brain cancerBy Sarah Schulte via WLS logoSunday, September 25, 2022 11:30PM...
A New Approach for DMG PatientsClinical trials are crucial for understanding the potential effects and benefits of new therapeutics. A recent study led by Dr....
Jared Hysinger – The role of a tissue navigator has shown that this process is not one-way. Patients have a unique role in informing how scientists research their diseases. By donating tissue, patients provide scientists with a real sample of their unique disease. We can compare it to others and with their own healthy tissue to find similarities and improve our treatment strategies.
Love Never Dies Through Gift From a Child, parents can turn loss and grief into action. A recent collaborative effort by the entire Gift from a Child team was...
Silas Martin was a Brony (Brotherhood of My Little Pony Lovers). Look it up – it’s even on Wikipedia! Mostly teens and college guys, a Brony probably has an amazingly gentle, kind spirit – even if he looks tough on the outside.
Early in Silas’s last year of life, he was offered a “Mini Wish” to go to an anime convention in southern Illinois. He was psyched! He asked Mom to take him and two of his older buddies. There were vendors, breakout sessions for Q & A, and fake martial arts fighting (with foam sabers)! People dressed as their favorite characters abounded.
From the time Joey could walk he was constantly on the move!! Running, jumping, sliding, dancing, you name it. He loved to play sports and would often be outside with his dad with a ball and a bat, or a soccer ball, or a football, you get the picture. Well when he was around 3 years old he saw WWE for the first time…..and just couldn’t get enough!!
My daughter Mia Nichelle Noflin. Mia passed on November 16, 2020 From DIPG. A rare pediatric brain tumor. This photo was taken in Feburary 2020, just a few weeks before her diagnosis.
This was the first year Gianna wasn’t here to celebrate 2/12 her “cancer free day.” Every year we did something big to celebrate . One year she was an honorary ball kid for the Knicks, another year they congratulated her on their scoreboard. By far our favorite day as when we were in invited to spend the day on the set of NBC Special Victims Unit and meet the entire cast and crew!
Tanner was always unique. He was a Renaissance man who had not yet lived long enough to know all that he did.
Books and stories were one of the things that connected Mikey and I the most. This love of story began with our mom reading to us each night as we lay beside each other in the bed we shared. It grew and evolved, as we did.