Sandro, a Brookline, Massachusetts, High School 2020 graduate and college athlete, was in pain when he returned to Ohio in the fall of 2023 to begin his senior year at Ohio Wesleyan University. His wrestling team’s trainer quickly scheduled an MRI. After seeing the results, the MRI technician escorted him immediately to the ER, and his mom, Jennifer, caught the next flight there, arriving just in time to meet with the hospital’s neurosurgeon.
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There’s so much to say about Madilee, but the confines of this page limit us. Her life overflowed with accomplishments, boundless love for others, and a powerful testimony. Though her time on earth was brief, she embraced every moment with purpose. From a young age, she radiated a glow that never waned, even as she courageously battled brain cancer. Madilee was an exceptional daughter, a perfect role model, and a loving big sister; she also cherished her pets dearly.
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Sebastian Daniel Guerra was funny, handsome, and full of charisma—the kind of child who could walk into a room and make everyone smile. He dreamed big, loved learning about U.S. presidents, and often reminded people to lead with kindness, proudly saying he had a “community heart.”
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Short of stature but big of heart, Joe impressed all who met him with his kindness and good humor, especially around Christmas or birthdays. He excelled at finding the perfect gift, often spending months developing an idea or theme. Although he had a quiet demeanor, Joe could deliver exquisite zingers resulting in fits of laughter from the room.
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Santi was born on February 8, 2016, sharing his birthday with his dad, Mauricio. Since his arrival, he filled his family with joy through his laughter and boundless energy. He grew up surrounded by love, especially with his brother Lorenzo, with whom he formed an inseparable bond. He enjoyed cycling, football, karate, and playing with his friends from the condominium, who became his second family.
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Khamon was nine years old when he was diagnosed with diffuse intrinsic pontine glioma (DIPG), an aggressive childhood cancer that forms in the brainstem. Smart, kind, respectful, helpful, responsible, and dedicated, he had been born and raised in Cambodia before moving to the United States in early May 2023.
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In early 2023, Allie started noticing some weakness in her left arm. We thought she had probably pulled something or strained a muscle. After some time passed and the weakness wasn’t improving—and even seemed to be getting worse—we took her to see an orthopedic surgeon.
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Aimee was 11 years old when she was diagnosed with brain cancer. She had two brain surgeries, a shunt placement, different treatments of chemo, 30 radiation treatments, and an immunotherapy trial. After a year of all these treatments, our family was told that there was nothing else that could be done.
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Jaxson Matteo was diagnosed with DIPG just three short weeks after his 7th birthday, on March 16, 2024. As with so many of your journeys, this came out of left field—he was a healthy boy who had just completed his third season of wrestling days before. Unfortunately, Jaxson won his battle on October 10, 2024. His journey was brief—six months and three weeks to be exact—but it was filled with courage and the true definition of a warrior.
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Liliana was diagnosed in April 2021 with Diffuse Intrinsic Pontine Glioma (DIPG) at the age of 2 ½ and passed away on June 17, 2023.
She endured photon radiation under sedation five days a week for six weeks, took steroids that caused significant bloating and weight gain, and began taking a phase 1 clinical trial medication.
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Layla Elizabeth So was a bright and compassionate young woman who touched many lives during her fifteen years. Born on April 8, 2009, in Pearl River, NY to her loving parents, Rizlene (Lisa) and Solomon So, Layla displayed an artistic spark and a keen intellect from an early age. Those closest to her recall her wisdom beyond her years, her gentle kindness, and her creative spirit.
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