Blogs: Families, Foundations & Researchers
Research Shows Families Want Option to Donate Post-mortem Tissue
Families who lose a child to brain cancer, want doctors to give them the option to donate their child’s tissue.
Donating tissue not only contributes to research for a cure, but donating helps families grieve and see something good come from their tragic loss.
Parents encourage brain tissue donation after young son dies from rare pediatric brain cancer
Parents encourage brain tissue donation after young son dies from rare pediatric brain cancerBy Sarah Schulte via WLS logoSunday, September 25, 2022 11:30PM...
Goundbreaking Publication from GFAC Center of Excellence at Stanford
A New Approach for DMG PatientsClinical trials are crucial for understanding the potential effects and benefits of new therapeutics. A recent study led by Dr....
Meet Jared Hysinger – Tissue Navigator
Jared Hysinger – The role of a tissue navigator has shown that this process is not one-way. Patients have a unique role in informing how scientists research their diseases. By donating tissue, patients provide scientists with a real sample of their unique disease. We can compare it to others and with their own healthy tissue to find similarities and improve our treatment strategies.
Love Never Dies
Love Never Dies Through Gift From a Child, parents can turn loss and grief into action. A recent collaborative effort by the entire Gift from a Child team was...
Memory Monday: Silas Martin
Silas Martin was a Brony (Brotherhood of My Little Pony Lovers). Look it up – it’s even on Wikipedia! Mostly teens and college guys, a Brony probably has an amazingly gentle, kind spirit – even if he looks tough on the outside.
Early in Silas’s last year of life, he was offered a “Mini Wish” to go to an anime convention in southern Illinois. He was psyched! He asked Mom to take him and two of his older buddies. There were vendors, breakout sessions for Q & A, and fake martial arts fighting (with foam sabers)! People dressed as their favorite characters abounded.
Memory Monday: Joey Clayton
From the time Joey could walk he was constantly on the move!! Running, jumping, sliding, dancing, you name it. He loved to play sports and would often be outside with his dad with a ball and a bat, or a soccer ball, or a football, you get the picture. Well when he was around 3 years old he saw WWE for the first time…..and just couldn’t get enough!!
Memory Monday: Mia Nichelle Noflin
My daughter Mia Nichelle Noflin. Mia passed on November 16, 2020 From DIPG. A rare pediatric brain tumor. This photo was taken in Feburary 2020, just a few weeks before her diagnosis.
Memory Monday: Gianna Gregoire
This was the first year Gianna wasn’t here to celebrate 2/12 her “cancer free day.” Every year we did something big to celebrate . One year she was an honorary ball kid for the Knicks, another year they congratulated her on their scoreboard. By far our favorite day as when we were in invited to spend the day on the set of NBC Special Victims Unit and meet the entire cast and crew!
Memory Monday: Tanner Gillen
Tanner was always unique. He was a Renaissance man who had not yet lived long enough to know all that he did.
Gift from a Child
Is a Swifty Foundation Program
Swifty is a recipient of the GuideStar Gold Seal of Transparency