Braylee was a girl with a true heart of gold. She was a healthy and active 10-year-old girl who had played in a volleyball game the day before her diagnosis—a diagnosis none of us saw coming. Braylee was diagnosed with a very large, inoperable brain tumor: grade IV Glioblastoma Multiforme.
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Our lives were forever changed on Christmas Eve of 2021, when our beautiful daughter, Carli, was diagnosed with DIPG—a rare and universally fatal tumor in the brain stem that afflicts an average of 200-300 children per year. Carli fought an inspirational battle for 18 months before receiving her wings in June of 2023.
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On March 4, 2023, Ian Charles Romaine left his earthly body to live forevermore in the presence of his greatest hero, his Lord and Savior, Jesus Christ. Ian passed away after an 11-month battle with one of the most aggressive terminal brain cancers that afflict children today: Diffuse Intrinsic Pontine Glioma (DIPG). However, cancer did not for one second define his identity.
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Jaedon was a different child, he was truly like no other child I have ever known. Even through his cancer journey, he was still telling people how Good God had been to him. He also said he wasn’t afraid to die because he knew where he was going and he talked to God all the time. Jae was so considerate he never got an attitude or mad at anyone he just endured.
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Our son, Noah McEver, was 7 years old when we found out he had Stage IV Glioblastoma.
Noah was a beautiful boy, inside and out. He was the most compassionate and considerate person we have ever known. He was always smiling—we can’t even remember a time when we didn’t see him smile. He cared so deeply for others.
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CBTN received a grant to cover the cost of sequencing on all samples in the CBTN biobank. This data will markedly increase the size and scale of the Pediatric Brain Tumor Atlas (PBTA) which is used by researchers around the world.
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Max was a lover of football, baseball, basketball, swimming, pogo sticking, stock trading, and anything that presented a challenge. He always had a bad joke in his back pocket. He lived his life in a kind, gentle, and gracious manner. Quite possibly the world’s best little brother to his siblings, Max still holds the title for the best hug-giver.
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Brenna Jane Francis Corcoran was a 4-year-old with beautiful long eyelashes and big blue eyes. She fought DIPG with strength and bravery for 7.5 months. Brenna was the youngest of six children and the youngest child of Bonnie and Robert Corcoran.
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Our sweet boy was the kindest, purest soul we will ever know. Everyone was a friend to him, and he cared for all. He was comforting and supportive, which was especially evident during his initial radiation treatments, where he quickly made friends with other patients.
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Lydia Quinn Sharpe, born on March 26, 2016, was the youngest of Tara and Jonathan Sharpe’s three daughters. She was soft-spoken, thoughtful, and extremely considerate. Of all her sisters, she was the most willing to compromise so that other members of her family were happy. Tara and Jonathan referred to her as their “go along, get along” girl.
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After diagnosis, Jace also loved – truly loved – the children he met with DIPG. He never asked why me? He asked why the little ones – the kids who haven’t played football under the lights, or skipped school, or kissed a girl. He asked his doctor, on the day he was diagnosed, “”how long do I have to make an impact before I die?””
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