Liliana was diagnosed in April 2021 with Diffuse Intrinsic Pontine Glioma (DIPG) at the age of 2 ½ and passed away on June 17, 2023.
She endured photon radiation under sedation five days a week for six weeks, took steroids that caused significant bloating and weight gain, and began taking a phase 1 clinical trial medication.
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Layla Elizabeth So was a bright and compassionate young woman who touched many lives during her fifteen years. Born on April 8, 2009, in Pearl River, NY to her loving parents, Rizlene (Lisa) and Solomon So, Layla displayed an artistic spark and a keen intellect from an early age. Those closest to her recall her wisdom beyond her years, her gentle kindness, and her creative spirit.
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Nova loved singing and dancing. It was a part of her daily life. She also loved sharing random animal facts with anyone who would listen. Her distinct giggle and smile were infectious. The beach was her happy place. She was the kind of girl you would want as a friend. She loved having fun, showed great compassion for people and animals, and always made the right choice.
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Kaycee’s Legacy Kaycee Rose Clark was born on March 3, 2014, after a prayerful time of asking God to bring her into our lives. She was the most perfect baby—she ate, slept, and was joyful. As soon as she began to talk, she would speak about God’s love for her. She thrived in everything she…
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Cheyenne’s Legacy Cheyenne Grace Nowland was born on March 15, 2024. She was the most precious baby girl, loved and adored by her parents, grandparents, aunts, uncles, and cousins. Cheyenne enjoyed going to church on Sunday mornings and Wednesday nights with her parents and especially loved spending time in the church nursery with her new…
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Keanu, affectionately known as Kiki, will always be a radiant presence in our family. Kiki’s beautiful, infectious smile and giggles brought joy to everyone he encountered, including his dedicated medical team at NewYork-Presbyterian/Weill Cornell Medicine.
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Maksim’s Legacy The first time Maksim was diagnosed was in 2015. He was almost 6. We had just started kindergarten—and it had only been half a year since we began a new life in the U.S. The diagnosis was medulloblastoma. Surgery, radiation, chemo. It was hard, but he did it! Then there were six years…
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Levi was our typical fun and loving 5 year old boy. He loved to play t-ball, going to school, traveling, and most of all, playing with Transformers. He loved his family as well and his friends. Levi was loved by many.
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Peyton’s Legacy Peyton was more than just our son—he was a light in this world. From the moment he entered our lives, his sharp wit and boundless curiosity made every day an adventure. He was the kid who could make anyone laugh, the one who saw every challenge as an opportunity, and who cared deeply…
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Gretchen was a vibrant 13 year-old girl who loved school, sports, reading fiction and hanging out with her friends. She was going to start high school and try out for the field hockey team in August 2023
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Sammy’s Legacy Sammy was a cheerful and rambunctious soul. He mastered riding a pedal bike on his first attempt at age 3. He loved trains—whether wooden, electric, or real—biking, racing around playgrounds, jumping on trampolines, and playing with his big brother. Sammy was the picture of energy and health until shortly after his 5th birthday…
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