Kevin was a bright, good, and beautiful soul. From his earliest days, he was full of questions—constantly wondering how things worked and why the world was the way it was. That insatiable curiosity guided so much of who he was. He was a voracious reader, a creative force with Legos, a dedicated gamer in Minecraft, and a young artist who found joy in music and drawing.
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In December 2016, Mason came home from school sick with flu-like symptoms. By Christmas, Mason was throwing up every day. After numerous doctor visits, he was diagnosed with anxiety. However, our gut told us it was something much worse. Mason wasn’t eating, was losing weight, and started to go numb on the right side of his face.
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“Look, Mommy, me silly!”
Four words that changed the course of Josh’s life on December 7, 2002 (the day after his 2nd birthday), when he stumbled into the kitchen, banging into the walls during a seizure.
“Pediatric brain tumor,” the neurologist said. “It’s most likely benign.”
Famous last words.
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July loved life! He cherished every moment with his family and friends, and whenever he could, he loved playing football.
He was diagnosed with diffuse intrinsic pontine glioma (DIPG) on October 12, 2023, when he was just four years old. After many grueling weeks of treatment at St. Jude Children’s Research Hospital in Memphis, Tennessee, July’s family chose to spend as much time together as possible.
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David was a 16-year-old accomplished U.S. Tennis Association junior player with the goal of becoming a professional tennis player someday. He lived in South Bend, IN with his parents Albert David IV and Pamela (Mozdzierz) Filer and their dog, Percy for 15 of his 16 years. In late 2021, the family moved to Orlando, FL for David to pursue his tennis aspirations. Four months after the move, David was diagnosed with Glioblastoma.
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There’s so much to say about Madilee, but the confines of this page limit us. Her life overflowed with accomplishments, boundless love for others, and a powerful testimony. Though her time on earth was brief, she embraced every moment with purpose. From a young age, she radiated a glow that never waned, even as she courageously battled brain cancer. Madilee was an exceptional daughter, a perfect role model, and a loving big sister; she also cherished her pets dearly.
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Short of stature but big of heart, Joe impressed all who met him with his kindness and good humor, especially around Christmas or birthdays. He excelled at finding the perfect gift, often spending months developing an idea or theme. Although he had a quiet demeanor, Joe could deliver exquisite zingers resulting in fits of laughter from the room.
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Santi was born on February 8, 2016, sharing his birthday with his dad, Mauricio. Since his arrival, he filled his family with joy through his laughter and boundless energy. He grew up surrounded by love, especially with his brother Lorenzo, with whom he formed an inseparable bond. He enjoyed cycling, football, karate, and playing with his friends from the condominium, who became his second family.
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Khamon was nine years old when he was diagnosed with diffuse intrinsic pontine glioma (DIPG), an aggressive childhood cancer that forms in the brainstem. Smart, kind, respectful, helpful, responsible, and dedicated, he had been born and raised in Cambodia before moving to the United States in early May 2023.
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In early 2023, Allie started noticing some weakness in her left arm. We thought she had probably pulled something or strained a muscle. After some time passed and the weakness wasn’t improving—and even seemed to be getting worse—we took her to see an orthopedic surgeon.
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Liliana was diagnosed in April 2021 with Diffuse Intrinsic Pontine Glioma (DIPG) at the age of 2 ½ and passed away on June 17, 2023.
She endured photon radiation under sedation five days a week for six weeks, took steroids that caused significant bloating and weight gain, and began taking a phase 1 clinical trial medication.
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